Vaincre la Mucoviscidose
Cystic fibrosis (CF) is a life-limiting inherited condition caused by a faulty gene that controls the movement of salt and water in and out of cells. This causes mucus to gather in the lungs and digestive system and creates a range of challenging symptoms.
People with CF often look healthy, but it’s a life-limiting condition that can affect those living with it in many ways.
The effects and treatments varying according to the individual’s genotype (genetic make-up), but the symptoms arise from the build-up of mucus in the lungs and digestive system. These include poor lung function, frequent and persistent lung infections and the inability to effectively digest food, particularly fats. Additional complications include CF-related diabetes and bone disease.
Lung infections often require intravenous antibiotics involving long hospital stays away from friends and family, which can also take a toll on the mental health of people with cystic fibrosis. Poor health may also make it difficult to maintain a steady job with regular hours.
Created in 1965, Vaincre la Mucoviscidose provides support for patients and their families in every aspect of their lives turned upside down by cystic fibrosis. The association is organised around 4 priority missions: to heal, provide care, improve the quality of life and increase awareness.
- Finding a cure for tomorrow by supporting and financing research
- Providing treatment today by improving the quality of care
- Coping with cystic fibrosis by improving patients’ quality of life
- Increasing the awareness of the general public and informing parents and patients
Since 2011, we have raised €4950 from charity events and the sale of Christmas cards in France.